​Patient Associations

Impact the development of new therapies

IQVIA is helping the world’s leading patient advocacy associations in their efforts to accelerate the development of new treatments and elevate the quality of patient care.

Doctor and nurse with patient

Discover IQVIA’s Registry Solutions

Access IQVIA's industry-leading technology and full range of services, from strategic consulting and program design, to technology support and quality assurance. Our registry solutions can be designed to meet the needs of your members, and support both practice improvement and the promotion of research:

  • Multi-tenant architecture, data modeling, and robust data warehousing, allows you to operate multiple registries and sub-studies on a single platform
  • Intuitive web-based interface minimizes training requirements and creates consistency across registry programs
  • Patient-reported outcomes designed for desktop or mobile use, simplifies the collection of high-quality real world data
  • Master patient index enables cross-registry analysis, reporting, and longitudinal tracking
  • Advanced EHR and medical device integration capabilities decreases data-entry burden and removes participation barriers

Proud to be a partner

IQVIA's experts have extensive experience designing and deploying registries for some of the most prominent patient associations and medical specialty societies.

  • The Cystic Fibrosis Foundation’s CF Patient Registry, hosted on an IQVIA technology platform, helps caregivers and researchers identify new health trends, spot effective treatments, and design clinical trials.
  • American Heart Association/American Stroke Association’s Get with the Guidelines® program is hosted on technology provided by IQVIA, and impacts more than 80,000 patients annually.
  • The American College of Surgeons (ACS) uses IQVIA’s Registry Platform to deploy multiple patient registries with robust metrics that improve the quality of surgical care.
  • Agency for Healthcare Research and Quality (AHRQ) and IQVIA partnered to build a landmark guidebook on patient registries, with specialized guidance for rare disease registries.
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